Charities.............
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Charities.............
Gentlemen, I rarely donate to charities other than the disabled vets. Too much corruption, high salaries for the staff, etc. I have found one that I will be giving donations.
EB Medical Research Foundation
I have a personal connection with this one as my granddaughter, her sibs, and most of the family on the mother's side have this horrible disease.
The only thing we are thankful for is they have a mild form of the disease. This is bad enough as they cannot walk for any distance, can't use their hands for prolonged periods as they will get huge blisters, cannot participate in school activities that require physical exertion, etc.
It seems to be a relatively unknown disease, at least I had not heard of it until I came to know my daughter-in-law, and this is my reason for posting. I'm sure there are many such diseases that do not get the attention or funding that the more common diseases get, so I'm thowing this one out for information. Thanks. jd
EB Medical Research Foundation
I have a personal connection with this one as my granddaughter, her sibs, and most of the family on the mother's side have this horrible disease.
The only thing we are thankful for is they have a mild form of the disease. This is bad enough as they cannot walk for any distance, can't use their hands for prolonged periods as they will get huge blisters, cannot participate in school activities that require physical exertion, etc.
It seems to be a relatively unknown disease, at least I had not heard of it until I came to know my daughter-in-law, and this is my reason for posting. I'm sure there are many such diseases that do not get the attention or funding that the more common diseases get, so I'm thowing this one out for information. Thanks. jd
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