For several years, my sister has had bad migranes that last most of a week. She has been from doctor, to doctor, to doctor, all over the country.
The migranes used to happen about once a month, but have gotten to a point where they are down to about every other month.
The doctor describes hers as mini-strokes, half of her body is completely useless to her at that point, plus, she is in awful pain for that whole week.

Well, if that wasn't bad enough, when we camped at the lake on Labor day, she found one of those pesky little mosquitoes, and ended up with West Nile Virus which put her into the hospital for another week and a half.

Then Saturday, she was coming to our Grandmother's birthday party in Stockton, and she got to Plainville, and had to pull over. She told my cousin who was riding with her, that she was seeing double of everything, pretty soon she more or less colapse. (its a good thing she was pulled over)
They called 911 and the ambulance came and picked her up. She spent the rest of the day in the ER shaking vilently (whole body), incoherent, and you could tell she was in alot of pain. The said the symptoms were that of West Nile, and they said that West Nile could have symptoms like this for up to a year. (even though the doctor from Salina said "No way, no how!")
When she arrived, her blood pressure was through the roof, and her chest hurt like she had a heart attack, she couldn't breath, she claimed that someone had dropped a house on her right arm.

Apparently, with West Nile comes brain swelling, and the hospital in Plainville did not have the equipment to deal with brain swelling, and promptly escorted her (via ambulance) to the Hays Hospital.

However the Doctor in Hays disagreed that this had anything to do with the West Nile virus that she had.
This doctor said that this could be Fibro Mialgia (sp?) but they haven't tested her for that yet.

Seems like every doctor is just taking a stab in the dark, nobody can find out what is causing this, and it is very frustrating, not to mention, her poor kids, and husband have to go through this each time.

She has an appointment with the Neurologist tomorrow, I hope there is good news! Any good news would be great right now.

I feel so bad for her, it just takes huge chunks out of her life, that she has to miss out on, in addition to being in so much pain.

 

I can relate dude, ever since the accident my wife has had severe migranes and no doc can seem to get them under control since they all have a different opinion of what the problem really is. One thought it was problems with her neck so they did surgery there and now it is worse, then there are the docs that say it's all in her head (that is where the migrane is after all lol) now they say it is her ***** so they want to do a breast reduction and I am here to tell you if they slice them up and make them smaller and it don't fix her I will be one mad husband lol!!!!

I sure hope they figure it out soon and get her back to normal, keep us posted!

 

that is rough man. I too get severe migranes every once in a while. When i do, i get blurry vision, leading into a bad migrane. my vision usually starts to blacken, then i get sick to my stomach and throw up. then i go to sleep due to sensetivity to light. noone can figure me out either.

Matt

 

Good luck to everyone. Hope ya'll get stuff worked out.

 

Damn that's ruff. I kow you had kinda been keeping me posted on her, but the passing out thing is a new one. I hope she is ok, and she will be in my prayers.

 

Sorry to read about the tough stuff going on for your sister. I hope they figure out what is going on and can fix it.

 

Well, my sister saw the neurologist today, the neurologist said that he or she did not think it was fibro mialgia (sp?) They are going to do a MRI, and a spinal tap, bone marrow biopsy, etc...
This doc says he or she thinks it is still the WN Virus bothering her. This is good news if this is true, because she would have to live with FM forever, WNV will only last about a year, but they think that this WNV has triggered a different kind of Migraine, and they are going to look into that.
Just seems like this thing is going in circles, faster than the docs can keep up.

 

Spinal taps SUCK!!!! hope after all that they figure it out!

 

I thought it was a great movie!! "our amps go to 11"

Seriously I hope she's ok. I she's still in our prayers.

 

My sister in law caught WNV a couple of years ago and had some of the effects last for about a year. She had lots of tiredness etc. Often if it is mild, folks may not even know they have it.

 

Hope she gets better quickly

 

well, docs are still all over the place, but my sister has been released to go home, temporarily. She can't walk, has to use a walker, apparently her legs don't work, she sleeps alot, and hasn't been able to hold any food down. The docs did an MRI yesterday, and it turns out that there is a bright red section of her brain, which may mean that she has had a stroke recently. The docs wanted her to go to KU Med, but then changed their minds, and want her to go to the Mayo Clinic in NY. However she can't go there until she starts to stabilize. Apparently the area that is bright red, is the part that controls the central nervous system, which explains why she is in so much pain, and can't control her legs.

 

I wish there was something we could do for you. Your sister and you and your family will be in our thoughts and prayers. We will be waiting and wishing for good news. If ya need anything just let us know.

 

GS I am sorry to hear that. You and your family have our prayers for a full and speedy recovery.

 

well, mom called this morning, it seems that a few other people in the salina area around where my sister lives have been having some of the same symptoms my sister is suffering from. Her neighbor, and another person about a block away. Weird!