ive been going through some intense medical stuff lately. when my friend was diagnosed with MS and we spoke shortly after....we discoverd i had the same symtpoms that she did, i wont get into them all..thats not the point. i have been seeing my doctor for 5 months because of a headache(at first) that wouldnt go away, id never had a headache in my life. after months of trying different things to treat it, my doctor said point blank" at this point i want to begin testing for MS or a brain tumor" ive had three CT scans which were all negative for a tumor and had an MRI of the brain, an EEG and EMG to test for nerve damage and countless blood tests. so far its confermed that i have Anemia. the MRI results arent in yet.

my question is: what would you do? like my friend im just living my life. i can still work and drive and do what i have to. its harder for me to do things i once did with ease, but i can still function. what would you do if you had to live youre life differently because of a medical condition?

 

It's really hard to say what I'd do if I was in a situation. I would probably continue on with my day to day things. Making the most of each day and doing the things I've always wanted to do but didn't get to yet. I'd spend more time with family and friends. This is what I believe I'd do, but like I said, I haven't been put in that situation yet. I do however, wish you and your friend the best and hope that everything turns out good for you. Take care.

 

icelander wrote:
"like my friend im just living my life. i can still work and drive and do what i have to. its harder for me to do things i once did with ease, but i can still function. what would you do if you had to live youre life differently because of a medical condition?"


I also have had to make adjustments both physical and mental as I have grown older and had medical problems. I have realized that life is a not a two lane road going over some distant horizon. I can see the end from where I stand now still at a distance but nearer than I ever thought possible. We will not be here forever. So, live every single minute of your life appreciating this wake up call as a gift. Don't waste a minute worrying. Starting today, the people in your life that need forgiveness forgive them. The people in your life that need love give them that gift. Those banjo lessons that you always wanted to take, do it. That old friend you lost contact with, find them. Get up early, stay up late. See the sun, the rain, the wind and rejoice you are alive! What a precious thing life is, let the ones that come after you worry about the end. May God bless and keep you. NHIM

 

I'm sorry to hear that icelander. It is easy to take good health for granted - until you're out of sorts.

Keep living your life as best you can. Don't quit doing anything, although at times it will seem that is the easiest option. You have a group of friends here at FTE that have lived through challenges and troubling times as well and you can be damn sure that they are all pulling for you.

Keep us posted. Hopefully, things will turn around and start improving and before you know it - the whole thing is in the past.

 

thanks dan. i quit flying because of this. id blackout during a stall. you know how bad that is, nobody blacks out in a stall. thats when i knew something was wrong.

i (honestly) dont want any sympathy. none of the docs are really sure whats wrong. anemia is the only diagnosis so far. they gotta find out whats causing the anemia. who knows what the mri will show.

 

After suffering a small stroke(TIA) in 1986 ,Then in 1990 I was later
dignosed with having Fibromyalgia. I immediately started doing research about the effects & how it affects a person's life.
I have now COPED with this (statistically, a woman's) disease.

About a year ago now (During Michelle's medical ordeal)I was told it has now changed to progressive MS.

So far for me, it has been an uphill battle of :

1)Trying to get *some* doctor's to believe some of the symptoms

2)Making & Keeping Friend's, plus,hoping they will understand what a person with this goes through,and that it isn't contagious and remain friend's.

3)COPING,COPING,COPING with it.
The coping skills are really hard to learn & live.

4)Constantly seeking medical help, and a cure.

5)Being involved in Medical study groups ( at this time 3)

6)Un-believable amounts of Medication

7)New and creative ways of therapy.Vitamins,supplements,Herbal remedies,acupuncture,Rolfing,Hydro-Therapy,Aqua-size,Deep Muscle massage just to name a few.

I had gone from being able to do 18 hours/day of Physical labour
5-6 days a week for 23 years in the Concrete construction business to then at the age of 36 to not be able to hold a glass of water for 30-40 seconds before having to set it down or drop it.

It is very discouraging & I wouldn't wish this on anyone.

Keep Strong,Stay Focused,Pursue Happiness.


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That would be an attention getter. Stalls can be very interesting and to black out during one, well, I never even imagined something like that. At least you had some warning signs and knew something was off kelter. Hopefully, you'll have better luck than Dennis did in getting things fixed.

Sympathy? I think a lot of the responses you will get are actually Respect. You are facing a challenge and anybody who knows something is wrong and trys to have it addressed is a beacon of light for the rest of us. Meaning, you have the spirit and determimation to go on in the face of difficulty. That goes for Dennis to.

 

Is the MD you are seeing hip to your current personal situation? If not, share with him/her what is happening with your girlfriend. It is not uncommon for people's bodies to "go south" in stressful times, and there is nothing more stressful than feeling like you cannot help someone you love. Whether your headaches and other symptoms have a physiological cause or not, don't give in, your girlfriend and her daughter need you to be strong.

I remember seeing a TV special with Richard Pryor about fifteen years ago. While describing his recovery from some self-inflicted burns, he referred to the late John Wayne's battle with cancer. Pryor told about Wayne being confronted with death and in a perfect rendition of the Duke, Pryor said, "Death?, Get the f&#*t of here death, I'll let you know when I'm ready". Death was afraid of the Duke , said Pryor, and in my humble opinion Pryor's perspective was a healthy one.
Be the Duke.

Besides that:

1. Eat and drink right, (make the twelver last a couple two three days)
2. Get some exercise, (not just sweaty, make your heart beat hard for a half hour or so)
3. Think positive
4. Think positive

You have friends you have never met, people praying for your girlfriend you'll never see, don't give in to symptoms that will wear you down dude, be strong.

 

I'm not a doctor, so this is off the cuff. I have a friend that has had bad headaches for years, the real bad ones. His relief came when the doctor prescribed oxygen for him. Simple solution that was missed by many doctors he had seen. Once a month a truck delivers a load of tanks, and if he feels a headache coming on, he just puts the mask on until the headache goes away. Maybe you should ask your doc about this?

 

stress was the first thing my doc thought it was...then maybe depression...ect.ect. like dennis ive had a bunch of different pills to take all with the same effect.....nothing. also like dennis ive had to get the docs to believe i was feeling this way. the hardest part is not knowing what is wrong. if it had been a tumor i could deal with it, atleast then id know what was wrong and could adjust my life accordingly. with this i dont know what to do. i have good days and i have bad days. ill list my symptoms to give you some idea of the bad days.

headache(for 6 months now), fatigue, unbelieveable forgetfulness, numbness in my face, tounge, hands and feet, trouble concentrating, trouble swallowing, dizzyness and lightheaded, seeing "stars" for nothing at all, trouble talking: slurred speach(without drinking) tottaly loosing my train of thought in mid sentence all the time, actually having to think about moving parts of my body, trouble walking, sencitivity to sunlight, blurred and sometimes double vision.

everytime i have a "bad" day, its worse than the last.

 

Let's talk...privately if you like.


E-mail me directly.



I've been through this EXACT same stuff for 16 years.


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Ice and Mil1ion - I've never met either of you , but I feel I know you through your posts and I consider us friends. You have both displayed a great attitude and it has been my experience that attitude plays a great role in dealing with any problem. Please know that alot of people are pulling for you.
Dono

 

Ditto what Dono said. We are all here for you and really apriciate the info and fun you put out in your posts. Keep it real fellas.

BROKEBRONCO

 

Thanks for the kind words fellas. i concider everyone here a friend. even though most of us have never met oneanother, we have a pretty tight nit community here and im glad to be a part of it.


in my original post i said "like my friend im still living my life and doing what i need to do." i didnt put that the right way. i can still work and drive....she cant but she's making the most of every moment and trying to battle her way back to as normal a life as she is capeable of having. i just wanted to clear that up.


dennis.......did you say youve had the EXACT same symptoms for 16 years now? id love to chat about it. i have to see the neurologist again next week to go over the MRI results and discuss the next step. id like to know more about your condition.

 

Sure , No problem Ice.
Just e-mail me directly.

Until then, Here is the scoop.

[link:www.fmnetnews.com/|Fibromyalgia]


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